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RESEARCH FOR PREVENTION, TREATMENT AND CURE OF LIVER DISEASES
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National Liver Registry
The Ministry of Health Malaysia had provided the MLF with RM134,600.00 grant for 2003/2004 towards the setting-up of the National Liver Registry at the Selayang Hospital. With this financial aid, the MLF was able to acquire basic facilities such as computers, software and furniture for the setting up of the Liver Registry in Hospital Selayang.
The purpose of the Registry is to gather information on data pertaining to liver diseases, and this will provide better treatment for Malaysians suffering from various liver related diseases. The Liver Registry will have a remote dialing station in the Institute for Medical research as well as at the Selayang Hospital.
The Liver Registry software was supported by Dendrite System, United Kingdom. Dendrite of UK did the initial set-up and primary training in November 2002. The uploading registry with Laboratory Information System (LIS) data was done in December 2002. By October 2003, drafts for templates: HBV/ HCV/ Acute liver failure/ endoscopy were ready. MLF initiated data collection on chronic Hepatitis B and C in February 2004. In July 2004 the Liver Registry was linked to the Laboratory Information System of the Molecular Research Laboratory of the Malaysian Liver Foundation.
The Liver Registry was launched on 21st July 2005 at Sunway Resort Hotel and Spa in conjuction with the Opening Ceremony of the 6th Liver Update by the Minister of Health Malaysia, YB Dato’ Dr. Chua Soi Lek.
The initial 2nd and 3rd year of the project was hampered by inadequate staffing and funding. Through the Clinical Research Centre (CRC), the Ministry of Health, Malaysia provided funding for the software licence in 2007.
At the end of February 2008, there were 748 chronic Hepatitis B, 164 chronic Hepatitis C and 71 acute liver failure cases registered.
On 3rd February 2010, the new web based Malaysian Liver Disease Registry (MLDR) supported by DataMed Clinical Computing Services Sdn Bhd and RainGate Systems Sdn. Bhd.
The Phase I development includes four Ministry of Health (MOH) sites which were Hospital Selayang, Hospital Sultanah Bahiyah, Hospital Queen Elizabeth and Hospital Kuala Lumpur and one Ministry of Education (MOE) site namely University Malaya Medical Centre.
In Phase II development the plan was to expand this registry to more MOH/MOE hospitals, private institutions and the government health clinics.
This multi-user, multi-site MLDR would provide a centralized database of patients with chronic hepatitis B and C. It also prescribed to the security policy of CRC.
In 2012, The Malaysian Liver Disease Registry (MLDR) has about 4,000 cases registered. The MLDR was funded by the Ministry of Health through the Clinical Research Centre of the Ministry. Participations were extended from five centres previously to seven centres. The situation since 2012 is not that favourable in view of some difficulty in securing adequate funding
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